Special Edition Webinar

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Tardive Dyskinesia and Its Treatment

An in-depth review of the proposed etiology of tardive dyskinesia, the patient population and the clinical trials that led to specifically indicated treatments for TD. Review of clinical outcomes observed in phase 3 studies for both efficacy and safety.

Presenter: Sharon Cahoon-Metzger PhD, Neurocrine Biosciences Medical Department

Dr. Sharon Cahoon Metzger is a member of the Neurocrine Biosciences Medical Department. Sharon earned a PhD in Developmental Neurobiology and was faculty at Dartmouth College School of Medicine. She has 16 years of industry experience in the biotech and pharmaceutical industry.

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Don’t Miss

Our 9-Part Neuro IDD webinar series!

Neurologic Concerns

in Adults with IDD

The AADMD selected the below areas of concern and carefully outlined resources for each area. Click on any area to explore the resources.

Past Webinars

Webinar #9
Behavioral Comorbidities in Adults with Epilepsy and Intellectual Disabilities
Time and Date: August 17, 2023 | 12 EST

This talk will provide an overview of behavioral comorbidities in adults with epilepsy and intellectual disabilities. The talk will focus on epidemiology, the role of the epilepsy and the anti-seizure medications as well as the role of epilepsy centers and neurologists in identifying these patients. In this webinar, participants will learn:

What behavioral comorbidities are common in patients with epilepsy and intellectual disabilities
How to use anti seizure medications in patients with epilepsy and intellectual disabilities
How to identify and counsel patients with caregivers

Speakers:
Dr. Marco Mula is a consultant epileptologist at St George's University Hospital in London, UK where he is Head of the Epilepsy Centre and also Director of the Department of Neurology. He is also Reader in Neurology at St George's University and Chair of the SouthWest London Epilepsy Network. He is Editor-in-Chief of Epilepsy & Behaviour, Deputy Editor of the British Journal of Psychiatry Open and in the editorial board of several international journals. He has been serving the International League Against Epilepsy in several roles for more than 15 years. He has published three textbooks and more than 200 publications in the field of epilepsy and behavioural comorbidities.

Tom Shillito is the Health Improvement and Research Manager at Epilepsy Action. Epilepsy Action is a UK charity whose purpose is to improve the lives of everyone living with epilepsy, and Tom's research and quality improvement projects uphold this aim. Many of these projects focus on people with epilepsy and a learning disability, most recently the Step Together project which benchmarks services supporting this group. This project has been shortlisted for a HSJ award and is being rolled out across the UK.

Moderator:
Dr. Grant Turek is a Child Neurologist at Dayton Children's Hospital where he works with children diagnosed with epilepsy and developmental disabilities, among other things. He completed a Child Neurology residency and Clinical Neurophysiology fellowship at the University of Louisville.

Webinar #8
Assessment and Diagnostics in Adults with Intellectual and Developmental Disabilities
Time and Date: July 25, 2023 | 12pm EST

Estimated 10-20% of all individuals with Intellectual developmental disabilities (IDD) have epilepsy while 50% of IDD individuals with IQ <50 have epilepsy. Genetic evaluation is considered a minimum care for adult patients with intellectual disability and epilepsy. However, there are no formal guidelines for diagnostic work up, and implementation of genetic tests in clinical practice is often inconsistent. We will share the experience of diagnostic odyssey of individuals with IDD and will discuss the role of genetic test in adults with IDD of unknown etiology. Rationale for considering genetic testing, the use of epilepsy gene panel, and benefits of precision medicine will be discussed. We will provide resources (CP panel and Epilepsy Gene panel at affordable cost) and specific examples of patients with IDD and epilepsy where diagnosis made a difference.

Speakers:
Sookyong Koh, MD, PhD is Professor & Chief of Pediatric Neurology, Children's Hospital & Medical Center, University of Nebraska. Dr. Koh is board certified in neurology with a special qualification in child neurology, clinical neurophysiology and epilepsy. Dr. Koh earned her PhD in neurobiology from the University of Rochester in New York. Dr. Koh has studied long term effects of early life seizures and advocated for an early intervention to prevent evolution of intractable epilepsy and irreversible brain injury. She has established Early-life Epilepsy Genetics Clinic, Ketogenic Diet Clinic, and Fast Access Neurology/ New Onset Seizure Clinic. Dr. Koh has investigated the role of immunity and inflammation in epileptogenesis and long term cellular and molecular consequences of early life seizures on developing brain. In recognition of her independent contribution to pediatric epilepsy research, she received the Dreifuss-Penry Epilepsy Award from American Academy of Neurology.

Lisa Manaster is the Co-founder and President of the CACNA1A Foundation, a parent-led nonprofit organization working to find specific treatment options and cures for patients with CACNA1A-related neurological disorders. She was inspired to start the organization in 2020 after her daughter, Emily (26 years old), received a diagnosis of a CACNA1A variant at the age of 20 from Whole Exome Sequencing. Lisa has been instrumental in forming relationships with clinicians and scientists to help build a collaborative research network. She helped to secure a Chan Zuckerberg Initiative Rare as One grant, launch the Foundation’s biorepository program, and grow its Natural History Study enrollment. To date, the CACNA1A Foundation has awarded over $300,000 in seed research grants. She has a Bachelor of Arts from Cornell University and a Master of Arts from Teachers College, Columbia University. She has worked as both a special educator and an educational advocate. She received interdisciplinary leadership training in the field of developmental disabilities as a Fellow in the Leadership Education in Neurodevelopmental and Related Disabilities (LEND) program affiliated with New York Medical College.

Moderator: Saihari (Shaker) Dukkipati, MS, PhD is a M4 student at the University of Nebraska Medical Center with a research focus in Human Motor Control and Neurodevelopment.

Webinar #7
Epilepsy Nursing Care in Adults with Intellectual and Developmental Disabilities
Time and Date: June 21, 2023 | 12 noon ET

A discussion on the role of the Learning Disability Epilepsy Specialist Nurse. A discussion of case studies, the make - up of the service, the typical roles of the nurse in this specialty.

Objective #1: To identify the roles of the Epilepsy Specialist Nurse in Learning Disability Nursing
Objective #2: To identify factors and reasons why the service has changed.
Objective #3: To identify challenges and successes in maintaining good seizure control in patients with Learning disabilities and epilepsy.

Speakers:

Edward Jones is a Learning Disability Epilepsy Specialist Nurse and Non Medical Prescriber. Edward works with people with Learning Disabilities, alongside carers families to manage epilepsy alongside physical and mental health co-morbidities. He works with adults - 18 and over, often until the end of life. He trains and advises carers and families to keep patients safe. Edward’s work is varied, highly specialized and very rewarding.

Deb Maloy is a Registered Nurse, Certified Developmental Disabilities Nurse, and certified as a DODD RN Instructor. Deb has been a nurse for thirty-eight years and has experience in the field of DD for 30 years. Deb is the current President of DDNA and has been on the Board of Directors for 8 years. Deb is currently the Director of Development and Education with Tarrytown Expocare Pharmacy and works as a consultant for the field of I/DD. Deb brings with her years of experience within the field of I/DD, in ICF settings, supported living waiver, health services coordination, respite programs, adult services, and behavioral health services.

Moderator::

Dr. Grant Turek is a Child Neurologist at Dayton Children's Hospital where he works with children diagnosed with epilepsy and developmental disabilities, among other things. He completed a Child Neurology residency and Clinical Neurophysiology fellowship at the University of Louisville.

Webinar #6
Genetics and Epilepsy in Adults with Intellectual and Developmental Disabilities
Time and Date: May 22, 2023 | 12 noon ET

Patients with some forms of monogenic epilepsies may have severe comorbidities such as intellectual and developmental disabilities (IDD) and autism spectrum disorders (ASD). While these patients can receive excellent care in the pediatric system, often, the level of care they receive in the adult health care system (AHCS) is often below expectations. In addition, many adults who received extensive genetic investigation when the epilepsy and IDD first manifested do not have a genetic diagnosis, since many of the genes associated with developmental and epileptic encephalopathies (DEEs) have only been found in recent years.

During this talk we will discuss:

Mechanisms associated with epilepsy and IDD in patients with monogenic DEEs.
The challenges of transitioning these patients from the pediatric to adult care.
The (limited) understanding of natural history of these conditions as patients age.

This webinar will discuss the following objectives:

Understand why Epilepsy and IDD can occur in patients with monogenic epilepsies.
Understand challenges of transitioning patients with DEE to the adult health care system
Learn some of the manifestations of these diseases as patients age (natural history).

Speakers:

Dr. Danielle Andrade is a Professor of Medicine (Neurology) at University of Toronto and the Medical Director of the Epilepsy Program of University Health Network, University of Toronto. She is also the Director of the Adult Genetic Epilepsy (AGE) Program at University of Toronto, a pioneer program established to promote care and research in adult genetic epilepsies. She is also the former Chair and now Co-Chair of the ILAE Task Force on Child to Adulthood Transition.

Dr. Andrade’s research interests are on the area of genetic epilepsies and their natural histories and the field of transition of care from pediatric to adult. Dr. Andrade and her team have identified and characterized several epilepsies and comorbidities in adults with genetic epilepsies, including Dravet syndrome. She has also identified the first gene associated with SUDEP (sudden, unexpected death in epilepsy) in patients with non-syndromic epilepsy. Her team has also discovered genes responsible for Lennox-Gastaut syndrome, Jeavon’s syndrome, teenage-onset neuronal ceroid lipofuccinosis progressive myoclonus epilepsy, among others.

Mary Anne Meskis was a founding member of the Dravet Syndrome Foundation (DSF), accepting the position of Executive Director in 2012. She has owned and managed several small businesses in the private sector for over 25 years, working primarily in sales and project management. While under her direction, DSF has placed a focus on research, as well as patient community engagement and education. DSF has worked with multiple industry partners on several clinical trials since 2016, including some that are currently underway. These trials have resulted in three FDA-approved medications for the treatment of Dravet syndrome since 2018.

In addition to her role at DSF she serves on several epilepsy working groups and industry advisory panels. She currently resides in western North Carolina with her husband and the youngest of her three children, Elliot (age 23), who has Dravet syndrome.

Moderator::

Webinar #5
Transition of Care in Adults with Intellectual and Developmental Disabilities
Time and Date: April 17, 2023 | 12pm Eastern

Overview:
The child neurology community has been focused on developing, disseminating and incorporating the principles of transition of care over the past decade. The overarching goal is to guide each patient to full independence as much as possible over the course of years coinciding with adolescence. Although the main focus is on self-management skills, special challenges with IDD requires modification of goals and additional resources.

Child and adult neurologists as well as patients, caregivers and others are determined to improve the lives of young adults with IDD as they approach “the cliff”; when the expectation of transfer to adult medical services coincides with the end of childhood educational and other support services.

This presentation will describe the principles of transition in all individuals with neurologic disorders, with an emphasis on how they can be applied to the unique issues of individuals with IDD. Discussion will highlight current efforts to expand incorporation of the principles into daily practice. Other potential solutions to facilitate more successful transition include more education of adult neurologists unfamiliar with recent neurogenetic advances, new medical codes for transition care, and more support for nurse educators and transition coordinators. Beyond medical needs, neurologists need to consider creative vocational and recreational opportunities and unique community living arrangements. Speakers will emphasize the role that family, caregivers and advocacy organizations can play to ensure that medical professionals are meeting the comprehensive needs of adults with IDD.

Objectives:

To understand the nature of transition as a process rather than a single moment of graduation to adulthood.
To explore the gaps in the evidence base to guide clinicians in supporting programs and services for optimal transition care.
To appreciate the role of families, caregivers and advocacy organizations in fully understanding the expectations and needs for successful transition of individuals with IDD.

Speakers:

Lawrence W. Brown, MD is Emeritus Associate Professor of Neurology and Pediatrics at the Children’s Hospital of Philadelphia (CHOP) and the Perelman School of Medicine of the University of Pennsylvania. He is past president of the Child Neurology Foundation and founding chairman of its medical transition initiative to develop tools for successful transition. He is senior author on its consensus statement published in Neurology with endorsements by the American Academy of Neurology (AAN), American Academy of Pediatrics (AAP), the American Epilepsy Society (AES) and Child Neurology Society (CNS). He was until recently co-principal investigator of an epilepsy education and transition project funded by the Health Resources Services Administration (HRSA) in collaboration with the AAP as well as principal investigator of an NIMH collaborative grant on the genetics of Tourette syndrome.

Dr. Christina SanInocencio is an assistant professor of communication and a rare disease advocate / consultant with over 15 years of experience in rare epilepsy leadership. In 2008, Christina founded the Lennox-Gastaut Syndrome (LGS) Foundation, an international non-profit organization dedicated to individuals living with this rare and catastrophic form of epilepsy. She is also the sibling to an adult man named Michael who has been living with LGS for over 30 years. Currently, Dr. SanInocencio serves as a board member for Coalition to Cure CHD2, on the coordinating committee for the Rare Epilepsy Network, and as a consultant for several rare epilepsy organizations. Her research interests include interpersonal health communication, social support, transitions of care, and lived experiences of rare disease patients and their families.

Amy E. Brin, MSN, MA, PCNS-BC, has been working on behalf of children/youth living with special needs and their families for over two decades. Since 2015 Brin has been serving as the Executive Director and CEO of the Child Neurology Foundation, whose mission is to serve as a collaborative center of education and support for caregivers and their children with neurologic conditions and facilitate connection with medical professionals who care for them. Through her leadership, CNF has experienced consistent and unprecedented growth in strategic partnerships, programming, and overall operations. Prior to joining CNF, Brin led the development and provision of care in various tertiary, ambulatory and community-based pediatric and perinatal palliative and hospice programs. She served as a national consultant, building systems of care for children and youth living with special healthcare needs, with a specific focus on program development for complex, chronic care models of service. Brin’s specialization is in pediatrics, medical home core components, hospice and palliative medicine throughout the care continuum, home health, transitions of care, care coordination and case management. Brin is a Board-certified pediatric advanced practice nurse. Brin is a published author, award winning speaker, and trusted convener, which has earned her international recognition as a recipient of the Platinum Facilitation Impact Award (International Facilitators Association), as well as being elected Chair of the Epilepsy Leadership Council (a consortium of nearly 60 epilepsy advocates advancing a collaborative research and policy agenda) – and in 2022, Brin was nominated to the NIH- National Advisory Committee on Neurologic Disorders and Stroke.

Dr. Ann C. Tilton is a pediatric neurologist and a professor at LSU Health in New Orleans, Louisiana and is affiliated with Children's Hospital New Orleans. She received her medical degree from University of Texas Medical Branch School of Medicine and has been in practice for more than 20 years. Her specialty is in General Neurology with a focus in spasticity and neuromuscular disorders. Dr. Tilton is the Former President of the Child Neurology Foundation, Former President of the Child Neurology Society and Former Vice President of the AAN Board of Directors.

Webinar #4: Treatment of Intractable Epilepsy: Epilepsy Surgery and Neurostimulation
Wednesday, March 28, 2023 | 3pm Eastern

Overview:
Issues: In about 1/3 of people with epilepsy, seizures are not fully controlled with medication ("medically intractable"). This talk will review 2 important non-medication options.
Findings: "Epilepsy surgery" refers to removal or disconnection of part of the brain to alleviate seizures. A variety of procedures are available including "lesionectomy" (removing an abnormality), "lobectomy" (removal of part or all of a lobe of the brain), "functional hemispherectomy" (removal and disconnection of one side of the brain), and "callosotomy" (disconnection of the 2 sides of the brain). "Neurostimulation" refers to devices which provide electrical stimulation to the nervous system to reduce seizures. There are currently 3 FDA approved devices. Proper patient selection is critical for successful treatment. Many people with developmental disabilities may be candidates for these procedures, but the required preoperative testing may be challenging in this population. Testing is needed to classify and localize the seizures.

Conclusions: Surgery and neurostimulation may eliminate or significantly reduce seizures in many patients. These options should be considered as soon as it is clear that seizures are not adequately controlled with medication. Early referral to an Epilepsy Center is important to establish why seizures are not controlled and determine the best treatment options.

Speakers:

Dr. Eric Geller received his B.A. in Biology from Princeton, M.D. from Brown, and neurology training at the Harvard-Longwood Neurology Program. After completing fellowship in epilepsy and clinical neurophysiology at the Cleveland Clinic Foundation, he served in the Epilepsy section and was the director of the intraoperative monitoring program. In 1998 he helped found the Comprehensive Epilepsy Center at Cooperman Barnabas Medical Center in Livingston NJ, where he is Director of the Adult Comprehensive Epilepsy Program and of the Clinical Neurophysiology Laboratory. He has been an investigator in multiple clinical epilepsy trials. He has served as a board member for the Family Resource Network of New Jersey and on the NJ State Task Force on Epilepsy. His clinical focus is the treatment of epilepsy, especially surgical treatments and neurostimulation.

Liza Gundell is the CEO of The Family Resource Network and its affiliate organizations: Autism Family Services of NJ, Caregivers of NJ and Epilepsy Services of NJ. She currently serves as the Vice Chair on the board of Epilepsy Alliance America. Liza has actively worked on a number of national and state initiatives. Her efforts lead to the establishment of an Epilepsy Task Force that made recommendations to the Governor on what is needed to educate the public and health professionals about screening, diagnosis and treatment of epilepsy and its complications; and recommendations to address psychosocial issues faced by persons with epilepsy. She served on the Autism Stakeholder Executive Planning Committee and the NJ Caregiver Task Force. She is a graduate of Towson State University in Maryland.

Moderator:

Zachary Taylor is a second year medical student at KCOM. He is currently president of Sigma Sigma Phi (honors fraternity), Student Osteopathic Medical Association, and Neurosurgery Club which he created during his first year. He is also Director Of Service for I/DD club and is head coach of Kirksville Special Olympics in Missouri. He is past Vice President of his medical school. He currently does research through a neurosurgery curriculum (NERVE) which is hosted by Cornell and other schools. His current research involves Alligator Neurosurgery where he is attempting to determine how venous blood affects cerebrospinal fluid pressure.

Webinar #3: Pharmacologic Care including Cannabinoids in Adults with Intellectual and Developmental Disabilities
Wednesday, February 15, 2023 | 12pm Eastern

Overview:
Among persons with IDD, around 26% suffer from epilepsy. The prevalence varies depending on the degree of IDD and reaches more than 50% among those with profound IDD. Chance of becoming seizure free is markedly lower than in the general epilepsy population, and mortality, for instance from sudden unexpected death in epilepsy (SUDEP), is higher. The prevalence of “rare” diseases is high in persons with IDD. Antiseizure treatment must be prescribed according to general principles and administered carefully taking account of the special needs of the population. Orphan drugs are available for certain syndromes. Progress in genetics may bring progress in personalized treatment.

Specific Aims:
Participants will know about the prevalence of epilepsy, comorbidities and prognosis in persons with IDD. They will be able to tailor antiseizure treatment according to the special needs of the patients and understand better the opportunities and limitations of orphan drugs and personalized medicine.

Method:
Teaching by presenting scientific data and case studies. Involvement of the audience is intended.

Findings and discussion:
Antiseizure treatment in persons with IDD and epilepsy is being done according to general principles. Special needs have to be met. We have seen first steps toward a personalized medicine within recent years.

Panelists:

Dr. Christian Brandt is a neurologist and epileptologist and Head of Department of General Epileptology at Bethel Epilepsy Center, Bielefeld, Germany. He is also head of the outpatients’ clinic and the study coordination center. His main interests are epilepsy and intellectual disability and the pharmacotherapy of the epilepsies. He is chair of the Intellectual Disability Commission of the German Society for Epileptology and acted as chair of the ILAE Intellectual Disability Task-Force from 2017 to 2021.

Sybille Burmeister was born 1971 in Hamburg, Germany. She came to the Rhine-Neckar region after studying history and German language and literature (Tübingen and Aix-en-Provence) through her then partner and working as an editor at the "Mannheimer Morgen". Since 2014 she has volunteered as executive of the German Epilepsy Association (Vorsitzende der Deutschen Epilepsievereinigung e.V.), the self-advocacy association and German chapter of the International Bureau for Epilepsy. She lives in Ludwigshafen.

Moderator:

Zachary Taylor, BS, MS2 is a second year medical student at KCOM. He is currently president of Sigma Sigma Phi (honors fraternity), Student Osteopathic Medical Association, and Neurosurgery Club which he created during his first year. He is also Director Of Service for I/DD club and is head coach of Kirksville Special Olympics in Missouri. He is past Vice President of his medical school. He currently does research through a neurosurgery curriculum (NERVE) which i

WEBINAR #2
Nutrition in Adults with Intellectual and Developmental Disabilities
Wednesday, January 18, 2023 | 12pm Eastern

Overview:
Adults with intellectual and developmental disabilities (IDD) are at high risk for poor diet quality. Furthermore, in adults with IDD as a result of certain underlying metabolic conditions, dietary management can have a profound impact on their neurologic function and quality of life.

Positions and Findings: Macie Steele was diagnosed with glucose transporter type 1 deficiency syndrome as a child and Johns Hopkins Neurology Resident Anna Patnaik, MD will begin the Webinar by presenting her medical history, diagnosis, and nutritional management strategies. Macie and her mother Glenna Steele, Executive Director of the Glut 1 Deficiency Foundation, will share their perspectives as patient and advocate on the importance of individualized nutritional management in health and disease. Finally, Janice Goldschmidt, MPH, MS, RD, LDN will discuss the nutritional and general health status of adults with IDD and strategies to address the nutritional and health needs of those with IDD with an overview of these disparate approaches.

Conclusions: Best medical practice incorporates the individualized nutritional needs of adults with intellectual and developmental disabilities.

Speaker Bios:

Macie Steele is 25 years old and was diagnosed with Glut1 Deficiency (glucose transporter type 1 deficiency syndrome) at 10 years of age. She lives in Owingsville, Kentucky with her parents, her sister, and her beloved pets. Macie volunteers regularly in a second grade classroom at Mapleton Elementary School and enjoys music, camping, and going to the lake with her family.

Glenna Steele was a founding board member and is currently the Executive Director of the Glut1 Deficiency Foundation. She holds a BS and MEd in Education from Eastern Kentucky University. She spent 15 years teaching public school kindergarten and first grade in Florida and Kentucky. She has been a volunteer with the Epilepsy Foundation of Kentuckiana and Kentucky Special Olympics and currently lives in Owingsville, Kentucky with her husband, John, and their daughters, Macie and Maggie.

Janice Goldschmidt, MPH, MS, RD, LDN received her Master’s Degree in Nutrition and Food Science as well as a Master’s in Public Health from the University of Maryland-College Park. She is actively involved as both a researcher and practitioner in the nutritional status of individuals with autism and other developmental disabilities and has published and presented on this topic in numerous professional publications and conferences. In 2018, the American Association on Intellectual and Developmental Disabilities (AAIDD) published her first book entitled Teaching Authentic Cooking Skills to Adults with Intellectual and Developmental Disabilities: Active Engagement. Janice is currently serving as the Director of Nutrition Services at Community Support Services, Inc. (Gaithersburg, MD) where she is responsible for development of programs intended to support the health and wellness of adults with autism through nutrition related programming.

Anna Patnaik is a third year neurology resident at The Johns Hopkins Hospital. She received her undergraduate degrees in psychology and biology at the University of Maryland, College Park and she attended medical school at the University of Maryland. She plans to pursue a fellowship in epilepsy.

Moderated by:
Dr. Mackenzie Cervenka is a Professor of Neurology at Johns Hopkins School of Medicine with subspecialty training in epilepsy. Dr. Cervenka is Medical Director of the Johns Hopkins Adult Epilepsy Diet Center and the Adult Epilepsy Monitoring Unit. She developed the Johns Hopkins Adult Epilepsy Diet Center in 2010 and has treated nearly 450 adults with epilepsy using nutritional approaches such as ketogenic diet therapies. She conducts clinical trials examining the feasibility, safety and efficacy of ketogenic diet therapies in managing medically resistant epilepsy and refractory status epilepticus, and also collaborates with investigators to evaluate these treatments for patients with alcohol withdrawal, glioma, Parkinson’s disease, migraine, and dementia.

WEBINAR #1
Overview and History of Epilepsy in Adults with Intellectual and Developmental Disabilities
Wednesday, November 2, 2022 | 12pm Eastern

Overview:
Neurologic complications in adults with Intellectual and Developmental Disabilities (IDD) are very common throughout an individual's life span. Spasticity, epilepsy and associated behavioral challenges including those associated with autism are all frequent challenges. It is well known that great disparities exist in healthcare for the IDD population. There is a great lack of education, training, curriculum, and awareness of these issues to the adult oriented healthcare provider. Being that many of these health consequences begin at a very early age in these individuals, their care is often provided by pediatric specialists. As they grow up and transition into adult care, lack of access to quality services becomes an ever-ending dilemma. The predominance of poorly care and supports for these numerous neurologic conditions leads to a continuation of negative health and personal consequences not only for the individual but also to their supports. The American Academy of Developmental Medicine and Dentistry (AADMD) in partnership with the Neurology Consortium of IDD Practitioners will be creating a webinar series that will help to address these issues. The much-needed education and training will be provided in a webinar format by national and international experts in the field.

Objectives:
1) The participant will be able to provide a historical perspective on how epilepsy care for those with IDD has evolved over the course of time to where it is now and where it still needs to go.

2) The participant will be able to describe several examples why transitioning of epilepsy care from a pediatric neurologist to an adult neurologist may be challenging.

3) The participant will be able to explain why the care of epilepsy in those with IDD should be person-centered and involve caregivers.

Speaker Bios:
Seth M. Keller, MD, a board certified neurologist in private practice with Neurology Associates of South Jersey. Dr Keller is on the Executive Board of the Arc of Burlington County as well as on the board for The Arc of New Jersey Mainstreaming Medical Care Board.

Dr. Keller is the Past President of the (AADMD) and is the co-chair of the National Task Group on Intellectual Disabilities and Dementia Practices (NTG). Dr Keller is also the founder of the Adults with I/DD Section in the American Academy of Neurology (AAN).

Raised in Philadelphia, PA, Keller received his bachelor’s degree from Temple University, earned his medical degree from The George Washington University School of Medicine in 1989, and completed his neurology internship and residency at Bethesda Naval Hospital.

Christine Linehan BA MA Dip Stat MPH PhD CPsychPSsI FRCPH is an Associate Professor with the School of Psychology, University College Dublin (UCD) and Director of the UCD Centre for Disability Studies. My research interests are intellectual disability and epilepsy. Before moving to UCD, I previously worked as Senior Research Officer with the National Disability Authority in Ireland, an organization established by statute to advise the Irish Government on disability issues. I enjoy international collaboration and currently chair two international committees: the Comparative Policy and Practice Special Interest Group of IASSIDD (the International Association for the Scientific Study of Intellectual and Developmental Disability) and the Intellectual Disabilities Task Force of ILAE (the International League against Epilepsy).

Grant Turek is a Child Neurologist at Dayton Children's Hospital where he works with children diagnosed with epilepsy and developmental disabilities, among other things. He completed a Child Neurology residency and Clinical Neurophysiology fellowship at the University of Louisville.