Spina Bifida

Below are resources recommended by the AADMD.

The mission of the Spina Bifida Association is to build a better and brighter future for all those impacted by Spina Bifida.

Tethered cord syndrome is a stretch-induced functional disorder associated with the fixation (tethering) effect of inelastic tissue on the caudal spinal cord, limiting its movement. This abnormal attachment is associated with progressive stretching and increased tension of the spinal cord as a child ages, potentially resulting in a variety of neurological and other symptoms.

Articles

  • Sachdeva S, Kolarova MZ, Foreman BE, Kaplan SJ, Jasien JM. A Systematic Review of Cognitive Function in Adults with Spina Bifida. Dev Neurorehabil. 2021 Nov;24(8):569-582. doi: 10.1080/17518423.2021.1907813. Epub 2021 Apr 19. PMID: 33872130.

  • Jasien JM, Mikati MA, Kolarova M, Smith B, Thera S, Lee P. Cognitive and motor function in adults with spina bifida myelomeningocele: a pilot study. Childs Nerv Syst. 2021 Apr;37(4):1143-1150. doi: 10.1007/s00381-020-04964-1. Epub 2020 Nov 13. PMID: 33185713; PMCID: PMC8012220.

  • Ware AL, Kulesz PA, Juranek J, Cirino PT, Fletcher JM (2017) Cognitive control and associated neural correlates in adults with spina bifida myelomeningocele. Neuropsychology 31(4):411–423. https://doi.org/10.1037/neu0000350

  • Mukherjee S, Pasulka J. Care for Adults with Spina Bifida: Current State and Future Directions. Top Spinal Cord Inj Rehabil. 2017;23(2):155-167. doi:10.1310/sci2302-155

  • Lapsiwala SB, Iskandar BJ. The tethered cord syndrome in adults with spina bifida occulta. Neurol Res. 2004 Oct;26(7):735-40. doi: 10.1179/016164104225017956. PMID: 15494114.

  • Yoshida F, Morioka T, Hashiguchi K, Kawamura T, Miyagi Y, Nagata S, Mihara F, Ohshio M, Sasaki T. Epilepsy in patients with spina bifida in the lumbosacral region. Neurosurg Rev. 2006 Oct;29(4):327-32; discussion 332. doi: 10.1007/s10143-006-0035-7. Epub 2006 Aug 25. PMID: 16933125.

  • Werhagen L, Gabrielsson H, Westgren N, Borg K. Medical complication in adults with spina bifida. Clin Neurol Neurosurg. 2013 Aug;115(8):1226-9. doi: 10.1016/j.clineuro.2012.11.014. PMID: 23245854.