IASSIDD Academy Workshops

Houston, Texas – Monday, June 5, 2017

Location: Houston Marriott Medical Center, 6580 Fannin St, Houston, TX 77030 (AADMD Conference Hotel)

Workshop Fees

Regular registration - $75 per workshop
Early registration (by April 28) - $70 per workshop

Member registration (AADMD, NTG, IASSIDD)
Regular registration - $70 per workshop
Early registration (by April 28) - $65 per workshop


To register for the IASSIDD workshops click the button.


Monday morning workshops (9:00am – Noon)

W-1 Neurology and Developmental Disabilities: Assessment and Diagnosis

Seth M. Keller, MD, American Academy of Developmental Medicine and Dentistry, Lumberton NJ

Many adults with intellectual and developmental disabilities (IDD) have complex and challenging health concerns, including neurologic complications. Neurologists may be asked to consult on people with Down syndrome, autism, cerebral palsy, or another developmental disability, yet the work-up and treatment in this patient population can be quite daunting. Many of these patients will be transitioning from pediatric care or haven’t had a regular health provider. The individual’s quality of life may hang in the balance if inadequate or improper care is provided. This workshop will review some of the common neurologic problems that often occur in adults with IDD, including epilepsy, spasticity, and gait dysfunction, as well as functional and cognitive decline. Treatment recommendations will be discussed with respect to medically refractory seizures, as well as the advantages of conversion to monotherapy and avoiding sedating AEDs. How to obtain information about prior baseline level of functioning in ADLs and to understand when a change and decline in function may represent the sign of a significant neurologic complication will be covered, as will how to diagnosis, treat, and assess for outcomes in care in a person with dementia. Also, covered will be communication strategies around the transition from pediatric neurology to adult neurology.

W-2 Preventing Malnutrition in Individuals with Developmental Disabilities: From Nutrition Screening to Intervention and Good Health

Dawna Torres Mughal, PhD, RDN, LDN, FAND, Gannon University, Erie PA
Janice Scott, MS, RD, CSP, LD, Texas Scottish Rite Hospital for Children, Dallas TX

Children with developmental delay and adults who have lifelong disabilities often have conditions that adversely affect their food intake and utilization of nutrients. Nutrition-related concerns associated with the disorders, combined with poor health habits, physical inactivity, use of multiple medications and limited access to services, increase risks for malnutrition. Malnutrition includes overnutrition and undernutrition. It stunts children’s growth and development, increases susceptibility to various illnesses, impairs recovery and healing, and increases morbidity and mortality. As individuals age, many may develop chronic diseases such a cardiovascular diseases and diabetes. Nutrition services can help prevent the preventable nutrition-related problems and aid individuals throughout their life course to maintain good health. Prevention is key to wellness. The workshop will focus on strategies for preventing malnutrition. The speakers will cover the importance of interdisciplinary approach and of comprehensive nutrition care that is community-based, family-centered, and culturally and age-appropriate.

Monday afternoon workshops (1:00pm – 4:00pm)

W-4 Reducing Health Disparities and Implementing ‘Best Practices’ in Health Care for People with Intellectual Disability

Sarah Ailey, PhD RN CDDN APHN-BC, Rush University, Chicago IL
Molly Bathje, PhD, OTR/L, Rush University, Chicago IL
Tamar Heller, PhD, University of Illinois at Chicago, Chicago IL

Disparities in health care and treatment of people with intellectual disability lead to increased morbidity, mortality, and costs, and decreased quality of life. A recent ‘Partnering to Transform Healthcare with People with Disabilities Conference’ enabled self-advocates across disability communities (intellectual, physical, sensory and mental) to partner with national experts (providers and policy makers, executives, insurers, regulators and others) to synthesize current innovations and improvement efforts in health care with people with disabilities, reach consensus on best practices, propose needed services development and policies, develop action plans, and create a research agenda. The speakers will discuss the findings from the conference with respect to implementable solutions, consensus on best practices and research, and the policy agenda recommendations for people with intellectual disability. Participants will be invited to contribute local health needs issues and barriers to services, join in on the dialogue, and develop action plans specific to their own situations.

W-5 Living while Dying: End of Life Supports for Older People with Intellectual Disability

Kathryn Service, RN, MS, FNP-BC, CDDN, Nurse Practitioner Consultancy, Northampton MA

Much like other persons, adults with intellectual disability (ID) are now surviving into old age. Many of the palliative care and end-of-life needs of adults with ID are quite similar to those of the general population. These include the need for pain detection and management, other symptom assessment and interventions, psychosocial support, and goal setting with options for care and treatment along with more effective end-of-life care planning. Yet, for people with ID, there are unique considerations that bear discussion. This workshop will cover ascertainment or determination of end of life (particularly with those who have profound ID), consent and legal constrictors, family involvement and conflicts in decision making, communication with non-verbal adults with ID, the understanding of active treatment, balancing person-centered and relationship-centered approaches, and the partnership between two systems and two permeating philosophies; intellectual disabilities and hospice/palliative care.


To register for the IASSIDD workshops click the button.



Back to Annual Conference information.

© 2007-2017 The American Academy of Developmental Medicine and Dentistry. All rights reserved.