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PEDD Webinar Series: Optimizing Well-being

in PEDD, webinar

Title: Optimizing Well-being

Date: Sept. 11, 2012 6:00 PM - 7:00 PM EDT

Presenters: Deb Dreyfus, Nila Benito

Deborah Dreyfus is an Assistant Professor in the Boston University Department of Family Medicine. She went to medical school at Robert Wood Johnson Medical School in New Jersey, went to her family medicine residency at the University of Wisconsin Department of Family Medicine in Madison, WI, and obtained a Masters of Science-Epidemiology after residency at Boston University School of Public Health during her Academic Fellowship. Her interests include providing primary care for children and adults with I/DD, transitioning of care from pediatric to adult care physicians, and residency education in the area of I/DD. She has presented at several national conventions topics related to communication, preventive care, and managing behavior changes in adults with I/DD and has written chapters on preventive health and violence in adults with I/DD.

Nila Benito is coordinator of community supports for the Florida Center for Inclusive Communities, University Center for Excellence in Developmental Disabilities. Nila’s primary focus is to help her sons with autism, Vincent’s & Joseph, be the best they can be. Through her work at USF, she promotes positive outcomes for and a greater understanding of people with developmental disabilities and their families. Before working at USF, she was a reporter for the Tampa Tribune and director of public relations at Shriner’s Children’s Hospital.

In 2004, Nila was appointed as chairperson of the Governor’s Blue Ribbon Task Force on Employment, Community Living, and School to Work Transition. In 2002, she was elected to two-year term as chairperson of the Florida Developmental Disabilities Planning Council and served a four-year term as a member of the Department of Education’s Statewide Advisory Committee. Nila’s professional journal publications and primary interests are in public policy, family/professional collaboration, inclusion, customized employment, transition, sexual health, and positive behavior supports.

Learning Objectives:

  • Employ appropriate and individualized health and oral health screening and prevention.
  • Provide health supports to patients across a variety of residential settings.
  • Identify opportunities for functional improvement through appropriate interventions, including assistive technology.
  • Proactively evaluate and address the common unmet healthcare needs of patients with ID/DD in an interdisciplinary manner.
  • Assess the impact of cognitive or physical decline on a patient’s independence and circle of support.
  • Discuss with patients the etiology and progression of disease.
  • Communicate a simple care plan to patients across the spectrum of cognitive abilities.
  • Appropriately raise and respond to issues concerning sexual and reproductive health.
  • Encourage participation in health promotion activities.
  • Maximize the health communication skills of patients in order to facilitate symptom self-report to other health team members and support personnel.
  • Support condition self-management across the spectrum of cognitive abilities.
  • Acknowledge barriers to medical care and community participation and brainstorm solutions to those barriers.
  • Tailor health promotion and disease prevention education to individual needs of the patient.
  • Formulate health plans, utilizing information from multiple sources including the patient, caretakers, and group home records.
  • Utilize a team-based, interdisciplinary approach to ensure efficient, high-quality care.
  • Provide proactive care to families based on an understanding of the family life cycle and changing individual and family needs.
  • Identify appropriate local resources to support the caregiver’s physical and mental health.

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