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AADMD and WITH Foundation Grant Award Announcement

in Matt Holder MD MBA, Articles, Info Blast

Informed Supported-Decision Making Practices on Healthcare Decisions for People with I/DD

(Palo Alto, CA, January 29, 2018) — The WITH Foundation and the American Academy of Developmental Medicine and Dentistry (AADMD) are pleased to announce that close to $200,000 will be awarded as a result of their RFP on informed Supported Decision-Making. These grants will fund a variety of programs related to informed Supported-Decision Making practices on healthcare decisions for people with I/DD. “We received a number of strong proposals from all across the country. It is a privilege to support these efforts, as they work to expand the awareness and understanding of informed Supported Decision-making, at both the local and national level” said Ryan Easterly, Executive Director of the WITH Foundation.

The following projects were selected for funding:

The University of Kentucky's Human Development Institute: The University of Kentucky's Human Development Institute proposes to create a universally designed tool to aid with Supported Decision-Making (SDM) in the informed consent process. The tool will be a visual aid designed much like a graphic novel to appeal to our target audience, transition-age youth with IDD. This tool will contain images and plain language words that will help facilitate conversations between healthcare providers, patients with IDD, and their supporters (family members/caregivers) during the informed consent process.

The National Disability Rights Network: The National Disability Rights Network (NDRN), working with Disability Rights Texas (DRTX), seeks to increase knowledge and respond to the barriers that exist in the use of Supported Decision-Making (SDM) by people with intellectual and developmental disabilities (I/DD) in the provision of health care. Through the process proposed, NDRN and DRTX will gain a better understanding of the concerns of healthcare providers regarding informed consent, legal capacity, and SDM, and use knowledge gained about these concerns to develop educational material targeted to health care providers, disability advocates, and family members in an effort to advance the use of SDM.

The Arc of California: The Arc of California, in collaboration with the Burton Blatt Institute and KPS4Parents, propose to develop informed Supported Decision-Making best-practices as an alternative to conservatorship and a means of improving life outcomes, and to provide in-person and web-based training to people with I/DD, families, and professionals. The free trainings will be promoted and presented as an all-day “boot camp” and will be conducted in two locations within the state of California. Additionally, a professionally produced online video series of the training will be made available to the general public.

The University of Missouri-Kansas City: The University’s Charting the LifeCourse (CtLC) Health Care Preferences and Supported Decision Making for People with IDD project seeks to enhance the partnership between medical professionals, adults with IDD, family members, and disability providers that supports informed choice and SDM practices on health care decisions. Utilizing a multi-level approach that enhances knowledge and skills, this initiative will provide training and coaching on SDM and facilitate effective communication with each target groups in the St. Joseph, Missouri area. A CtLC Healthcare Training and Coaching Toolkit will be developed and disseminated through this project.


WITH Foundation promotes comprehensive and accessible healthcare for adults with developmental disabilities.

The mission of the American Academy of Developmental Medicine and Dentistry is to improve the quality of healthcare for people with intellectual and developmental disabilities.


Press Contact:
Laura Shumaker
Director of Communications, WITH

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