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National Task Group on Intellectual Disabilities and Dementia Practices
What are we?
The ‘NTG’ is a coalition of individuals and organizations working toward ensuring that the needs and interests of adults with intellectual and developmental disabilities who are affected by Alzheimer’s disease and related dementia – as well as their families and friends – are taken into account as part of the National Plan to Address Alzheimer’s Disease. Members are families, association and organization representatives, practitioners, academics, and others who contribute time and effort to its activities.
The NTG is supported by the American Academy of Developmental Medicine and Dentistry and the Rehabilitation Research and Training Center on Developmental Disabilities and Health at the University of Illinois at Chicago and other partners, such as the Center on Excellence in Aging at the University at Albany and the Gerontology Division of AAIDD.
The NTG works to underpin the National Plan to Address Alzheimer’s Disease, and is represented by members at the quarterly meetings of the federal Advisory Council on Alzheimer’s Research, Care, and Services. The NTG is a member of LEAD - 'Leaders Engaged on Alzheimer's Disease' - a Washington-based coalition working to focus attention on Alzheimer’s disease and related disorders. The NTG has produced practice guidelines, screening tools, informational materials, and a national training and education curriculum among its many products.
An invitation to affiliate with the NTG is open. If you are interested in contributing to this effort, you can register as a contributing member or NTG friend at this site. For questions, please contact either Seth Keller, M.D. (American Academy of Developmental Medicine and Dentistry) at firstname.lastname@example.org or Matthew Janicki, Ph.D. (University of Illinois at Chicago) at email@example.com.
Please read the NTG's latest update of activities.
The chairs of the NTG are Dr. Seth M. Keller and Dr. Matthew P. Janicki.
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The NTG Track at the Global Summit on Innovations in Health and IDD – July 28, 2015
The NTG is participating in the Global Summit on Innovations in Health and IDD, the annual conference of the American Academy on Developmental Medicine and Dentistry (AADMD) to be held in Los Angeles, California – July 27-29, 2015. The NTG Track Day will be Tuesday, July 28th, and any interested persons are invited to register for the Day 2 option. The NTG Track Day will open with the invitational symposium, ‘Innovations and Research Advances in Dementia and Down Syndrome’, jointly sponsored by the NTG and the Tosinvest Sanità Organization. Speakers include Giorgio Albertini, MD, Michael S. Rafii, MD, PhD, Wayne Silverman, PhD, Claudia Condoluci, MD, and Michael Harpold, PhD. The balance of the Track Day will include sessions of papers and symposia on topics related to dementia, mild cognitive impairment, and cognitive decline – focusing on screening, assessment, diagnosis; epidemiology and demographics, interventions and treatment, health issues; family supports; housing; end-of-life care; innovations in care of early and mid-stage and advanced dementia, as well as other related areas.
For 2015 conference information, go to www.aadmd.org
For previous conferences.
NTG Education and Training Curriculum
The NTG has developed a new multipurpose universal education and training curriculum on dementia and intellectual disability ideally suited for use with enhancing workforce skills in various sectors. The curriculum was developed to address the National Plan to Address Alzheimer's Disease's call for enhancing workforce skills to provide high-quality dementia care. The NTG Education and Training Curriculum on Dementia and Intellectual & Developmental Disabilities is the basis for Dementia Capable Care of Adults with Intellectual Disability (ID) and Dementia, a two-day workshop targeted for direct services personnel who work with or provide primary supports for adults with intellectual disability affected by dementia, as well as family caregivers. For a listing of scheduled workshop as well as for more information on the NTG's workshop series and other education offerings, click here.