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IASSIDD Academy Workshops
Houston, Texas – Monday, June 5, 2017
Location: Courtyard by Marriott Houston Medical Center, 7702 Main St, Houston, TX 77030 (AADMD Conference Hotel)
Regular registration - $75 per workshop
Early registration (by April 28) - $70 per workshop
Member registration (AADMD, NTG, IASSIDD)
Regular registration - $70 per workshop
Early registration (by April 28) - $65 per workshop
To register for the IASSIDD workshops click the button.
Monday morning workshops (9:00am – Noon)
W-1 Neurology and Developmental Disabilities: Assessment and Diagnosis
Seth M. Keller, MD, American Academy of Developmental Medicine and Dentistry, Lumberton NJ
Many adults with intellectual and developmental disabilities (IDD) have complex and challenging health concerns, including neurologic complications. Neurologists may be asked to consult on people with Down syndrome, autism, cerebral palsy, or another developmental disability, yet the work-up and treatment in this patient population can be quite daunting. Many of these patients will be transitioning from pediatric care or haven’t had a regular health provider. The individual’s quality of life may hang in the balance if inadequate or improper care is provided. This workshop will review some of the common neurologic problems that often occur in adults with IDD, including epilepsy, spasticity, and gait dysfunction, as well as functional and cognitive decline. Treatment recommendations will be discussed with respect to medically refractory seizures, as well as the advantages of conversion to monotherapy and avoiding sedating AEDs. How to obtain information about prior baseline level of functioning in ADLs and to understand when a change and decline in function may represent the sign of a significant neurologic complication will be covered, as will how to diagnosis, treat, and assess for outcomes in care in a person with dementia. Also, covered will be communication strategies around the transition from pediatric neurology to adult neurology.
W-2 Preventing Malnutrition in Individuals with Developmental Disabilities: From Nutrition Screening to Intervention and Good Health
Dawna Torres Mughal, PhD, RDN, LDN, FAND, Gannon University, Erie PA
Janice Scott, MS, RD, CSP, LD, Texas Scottish Rite Hospital for Children, Dallas TX
Children with developmental delay and adults who have lifelong disabilities often have conditions that adversely affect their food intake and utilization of nutrients. Nutrition-related concerns associated with the disorders, combined with poor health habits, physical inactivity, use of multiple medications and limited access to services, increase risks for malnutrition. Malnutrition includes overnutrition and undernutrition. It stunts children’s growth and development, increases susceptibility to various illnesses, impairs recovery and healing, and increases morbidity and mortality. As individuals age, many may develop chronic diseases such a cardiovascular diseases and diabetes. Nutrition services can help prevent the preventable nutrition-related problems and aid individuals throughout their life course to maintain good health. Prevention is key to wellness. The workshop will focus on strategies for preventing malnutrition. The speakers will cover the importance of interdisciplinary approach and of comprehensive nutrition care that is community-based, family-centered, and culturally and age-appropriate.
W-3 Building Support for Families Caring at Home for Aging Persons with Intellectual Disabilities and Dementia
Philip McCallion, PhD, Center/Excellence in Aging & Community Wellness – University at Albany, NY
Mary McCarron, PhD, Faculty of Health Sciences, Trinity College Dublin, Ireland
Most attention in the intellectual disability and dementia field is directed to supporting staff caring for persons with dementia, but there are also families caring at home for sons and daughters who are now presenting with symptoms of dementia. Many of these families have been life-long caregivers, have contributed to their son’s or daughter’s welfare, growth, and skills for self-care. With aging and possible diminishing capacities and skills due to physical and cognitive decline and possible sensory impairments, parents and other family caregivers are challenged to adapt to levels of function and to attend to coincident health problems. This workshop draws attention to this group; the speakers will offer a framework for translating staff-focused approaches to family caregiving, emphasize how person-centered planning may guide care, and offer a series of family focused tools. The participants will be engaged in reflection on families who they know and who may need their assistance during this caregiving period.
Monday afternoon workshops (1:00pm – 4:00pm)
W-4 Reducing Health Disparities and Implementing ‘Best Practices’ in Health Care for People with Intellectual Disability
Sarah Ailey, PhD RN CDDN APHN-BC, Rush University, Chicago IL
Molly Bathje, PhD, OTR/L, Rush University, Chicago IL
Tamar Heller, PhD, University of Illinois at Chicago, Chicago IL
Disparities in health care and treatment of people with intellectual disability lead to increased morbidity, mortality, and costs, and decreased quality of life. A recent ‘Partnering to Transform Healthcare with People with Disabilities Conference’ enabled self-advocates across disability communities (intellectual, physical, sensory and mental) to partner with national experts (providers and policy makers, executives, insurers, regulators and others) to synthesize current innovations and improvement efforts in health care with people with disabilities, reach consensus on best practices, propose needed services development and policies, develop action plans, and create a research agenda. The speakers will discuss the findings from the conference with respect to implementable solutions, consensus on best practices and research, and the policy agenda recommendations for people with intellectual disability. Participants will be invited to contribute local health needs issues and barriers to services, join in on the dialogue, and develop action plans specific to their own situations.
W-5 Living while Dying: End of Life Supports for Older People with Intellectual Disability
Kathryn Service, RN, MS, FNP-BC, CDDN, Nurse Practitioner Consultancy, Northampton MA
Much like other persons, adults with intellectual disability (ID) are now surviving into old age. Many of the palliative care and end-of-life needs of adults with ID are quite similar to those of the general population. These include the need for pain detection and management, other symptom assessment and interventions, psychosocial support, and goal setting with options for care and treatment along with more effective end-of-life care planning. Yet, for people with ID, there are unique considerations that bear discussion. This workshop will cover ascertainment or determination of end of life (particularly with those who have profound ID), consent and legal constrictors, family involvement and conflicts in decision making, communication with non-verbal adults with ID, the understanding of active treatment, balancing person-centered and relationship-centered approaches, and the partnership between two systems and two permeating philosophies; intellectual disabilities and hospice/palliative care.
W-6 Voice and Choice in Mental Health
Lucy Esralew, PhD, Trinitas Regional Health Center, Cranford NJ
Mental health disorders can be a source of excess disability for persons with intellectual and developmental disabilities. This workshop will cover a review of select prevalent mental health disorders that present challenges to everyday living. The leader will provide an overview of specific strategies that can used to aid in shared decision-making in mental health treatment and relevant services and supports. Specifically covered will be ways to increase the input and communication of individuals with mental disorders and practical ways to increase choices to improve functional abilities and work toward personal valued goals ad outcomes.
To register for the IASSIDD workshops click the button.