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PEDD Webinar Series: Responsiveness, Respect, Self-Determination and Consent

in PEDD, webinar

Title: Responsiveness, Respect, Self-Determination and Consent

Date: Aug. 14, 2012 6:00 PM - 7:00 PM EDT

Presenters: Alice Pomidor, John Satterwhite

Alice K. Pomidor, MD, MPH, is a family practice geriatrician who has been in both academic and community practice for over 20 years, actively teaching medical students, residents, fellows and other health care professionals. She graduated with both her medical and master of public health degrees from Northwestern University in Chicago, completed her family medicine residency training in northeastern Ohio at Akron General Medical Center, and did her 2-year geriatrics fellowship at MetroHealth Medical Center in Cleveland.

Dr. Pomidor moved to Florida in 2003 and is a Professor in the Department of Geriatrics at the Florida State University College of Medicine in Tallahassee. Her activities have included being Medical Director of long-term care facilities and retirement communities, primary care for persons with developmental delay living independently and in group homes, and end-of-life care. She currently teaches medical students at FSU and provides Wound Care at Tallahassee Memorial Wound Healing Center.

Hi, my name is John Satterwhite, I am self advocate and I work at the Museum of Science and Industry in Tampa. First I want tell you about myself.

My name was John Roger Smith; I was born on September 20, 1967 in Youngstown, Ohio, with cerebral palsy. At that time, everybody thought that I was mental retardation but one nurse knew that I was a smart kid. I was in a nursing home from the time I was five to when I was thirteen years old. I was abuse with a switch from a tree and that nurse was fired. A few months went by and then I went to school during day and at night I was back at the nursing home.

In 1980, a family adopted me out of the nursing home and we moved to Florida. My senior year at school was crazy because I was very first student with a disability at that school. Back then the services were not good for persons with disabilities. I was determined to have a job like rest of the seniors but Vocational Rehabilitation didn't want to help me back then. So, finally I got a job with my high school teacher help. Then I had to go into a group home due to a personal problem at home. After I graduate from high school my adoptive mom wanted to move to Hawaii but I chose to stay in Florida and be independent and I am in good health, I am safe in my apartment and I have good personal care attendant and a lot of friends in my life.

Not only do I live independently but I am at working at the Museum of Science and Industry in Tampa, Florida. I volunteered for one year at the Museum. Then I applied for the guest service position. I got the job and I have been there almost fifteen years now.

Learning Objectives:

*Strategies for how to best provide health care to adults with developmental disabilities in medical offices/facilities

*Strategies for addressing the psychological and support needs of adults with special health care needs

Responsiveness

  • Acknowledge the individual’s abilities, while recognizing and respecting the specific needs related to their disability.
  • Adapt the physical environment and clinical interaction to optimize patient comfort.
  • Demonstrate sensitivity and respect for culturally-based beliefs.
  • Recognize the additive impact of cultural and linguistic considerations on health disparities.
  • Clarify the patient’s personal meaning about their own disability and their health and life goals.

Respect

  • Develop an increased level of comfort working with patients and care teams during clinical encounters.
  • Acknowledge the value of obtaining collateral information and demonstrate respect for team members from other disciplines.
  • Explore the dehumanizing aspects of calling people by their disability, condition or organ first.
  • Use, and encourage others to use, person-first language and proper disability etiquette.
  • Demonstrate empathy for patients.
  • Demonstrate empathy for patient’s families.

Self-Determination and Consent

  • Endeavor to conduct medical interviews and discussions with the patient directly.
  • Ask about and demonstrate respect for patient values and preferences.
  • Ensure that the guardian is informed and is making timely decisions.
  • Assess patient’s decision-making competency.
  • Investigate and apply state laws relating to informed consent.
  • Assemble the legal supports necessary to obtain informed consent.

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