National Task Group on Intellectual Disabilities and Dementia Practices

 

WELCOME TO THE NTG

The ‘NTG’ is a coalition charged with ensuring that the interests of adults with intellectual and developmental disabilities who are affected by Alzheimer’s disease and related dementias – as well as their families and friends – are taken into account as part of the National Plan to Address Alzheimer’s Disease.

We produce materials related to dementia, including practice guidelines, screening tools, education and training curricula and workshops, agency and family-based information, and other technical materials – as well provide technical assistance.

The NTG is affiliated with the American Academy of Developmental Medicine and Dentistry and the Rehabilitation Research and Training Center on Developmental Disabilities and Health at the University of Illinois at Chicago and other partners, such as the Center on Excellence in Aging at the University at Albany and the Gerontology Division of the AAIDD.  Read more about us.

The NTG is a member of LEAD - 'Leaders Engaged on Alzheimer's Disease' - a Washington-based coalition working to focus attention on Alzheimer’s disease and related disorders.

The chairs of the NTG are Matthew P. Janicki, Ph.D. and Seth M. Keller, MD.

 

NTG CONFERENCES AND EVENTS
 

>AADMD/NTG 2016 Conference

The next annual NTG conference will be held July 8-10, 2016 at the Swissotel Chicago, Illinois, as part of the annual conference of the American Academy on Developmental Medicine and Dentistry. For conference registration, accommodations and program information.  For abstracts of NTG conference sessions.

Read about our previous conferences.
 

>International Summit on Dementia and Intellectual Disability

The NTG has partnered with the University of the West of Scotland to conduct an 'international summit' on intellectual disability and dementia that will be held October 13-14, 2016 in Glasgow, Scotland.  For more information.

 

>Project ECHO

The NTG has partnered with Project ECHO at the University of New Mexico to deliver specialized intellectual disability and dementia consultation to group homes and community providers in rural and underserved areas.  For more information.

 

>Education and Training Workshops

The NTG offers a national series of two- and three-day workshops on dementia and intellectual disability for staff of provider agencies, program personnel, administrators, and caregivers.  For information and the complete schedule.  Contact Dr. Kathie Bishop for scheduling a workshop.

 

FAMILY SUPPORT NETWORK

The NTG sponsors an on-line support group network for family caregivers which meets periodically.  To read more and to join in…

 

NTG PRODUCTS

The NTG has produced and issued a number of products and publications, including an universal early detection and screening instrument -- the NTG-EDSD.  For a complete list of various language versions and to download copies go here.

 

PENDING ACTIVITIES

> Updating the NTG-EDSD (2.0). FMI: Dr. Lucy Esralew

> Practice guidelines on in-community dementia residences.  FMI: Prof. Nancy Jokinen

> Collaborating with the MED DS-SIG Workgroup on 'Regression and Down Syndrome'

> Connected with new national NIH funded biomarkers and Down syndrome study

 

NTG GOVERNANCE

The NTG is managed by a steering committee composed of the following NTG members: Matthew P. Janicki, Ph.D. and Seth M. Keller, MD. (Co-chairs); Kathleen Bishop, Thomas Buckley, Nicole Cadovius, Melissa Disipio, Lucille Esralew, Lawrence T. Force, Andrew Griffin, Mary Hogan, Nancy Jokinen, Ronald Lucchino, Philip McCallion, Julie Moran, Dawna Torres Mughal, Leone Murphy, Lin Nelson, Kathryn Pears, Vanessa Quick, Rick Rader, Mike RafiiNahib Ramadan, Kathy Service, Baldev Singh, KathySrsic-Stoehr, Helen Stepowany, Sara Weir

Nina Bennett serves as the NTG Administrative and Logistics Coordinator

A full membership list, including Steering Committee members, is available here.

 

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